Mutter hat Morbus Stargardt

Dank Spezial-Brille sieht sie zum ersten Mal ihre Tochter

SONDERKONDITIONEN: Satzpreis! Kayley was able to see Ivy's face clearly for the first time thanks to OXSIGHT Oynx glasses (PA Real Life/Ian Wallman). *** Former X Factor contestant gets gift of sight for her birthday thanks to miracle glasses allowing her to see her daughters face clearly for first time By Harriet Bullough, PA Real Life A former X Factor contestant was given the gift of sight for her birthday when miracle glasses allowed her to see her daughters face clearly for the first time. Professional artist Kayley Storey, 33, was just 15 when she was diagnosed with rare Stargardt disease, an inherited eye condition affecting an area of the retina known as the macula and reducing central or detailed vision. While she refused to let it hold her back auditioning for the 2009 X Factor alongside Olly Murs and getting to the final 12 girls she relied on her HGV mechanic husband, Ryan, 35, to describe even her favourite TV shows to her. And when their daughter, Ivy, was born last December, she could not see her face clearly. But on August 22, Kayley, of Gillingham, Kent, says she had the best birthday ever, thanks to a pair of special glasses which enabled her to at last see Ivy properly. She said: It was magical. I was lent the glasses to try, but if I can get a pair, itll change everything. I can watch Ivy in her Christmas plays and do her homework with her. Kayley first realised something was seriously wrong with her eyes when she was 15 going to the doctor when she could no longer see the board clearly in lessons. She said: First I couldnt see the board, then I noticed my teachers faces disappearing, so I went to the optician. My first two tests were inconclusive, then I was diagnosed with Stargardt disease. It was a real shock for my whole family, as we have no history of it. Left unable to focus on objects or people, Kayley found the condition very difficult to deal with. She said: Its like someone has poured a big tub of glitter in the middle of my eye. Its really isolating. If Im in a room full of people, I dont know whats going on or how people are reacting. Despite her difficulties, she was still determined to achieve her dreams and, aged 20, auditioned for X Factor singing Unchained Melody by the Righteous Brothers. I started singing because it was a way of expressing myself, she said. If I hadnt been diagnosed with Stargardt disease I would never have started singing in front of people. I guess, in a way, I cant see the audience, so I dont get scared. Then, in November 2018, she met Ryan on a dating app tying the knot under lockdown restrictions in September 2020, when she was 25 weeks pregnant. We got engaged in December 2019 and originally planned our wedding for April 2020, she said. We had invited over 100 people, but when Covid hit we had to postpone. I fell pregnant and we decided to have a small wedding of 30 people in September 2020. It was perfect. Having less people made it much easier, so it actually worked out perfectly. But, despite the couples love story, Kayley was hesitant about having a child and potentially passing her condition on. The condition is genetic, she said. I was apprehensive about having children, as I was worried about them having the condition. But speaking to Ryan I realised it was going to be ok. He said that if that if we created someone like me then it was worth having even more people in the world. From that moment, I knew I wanted a family with him. Giving birth to beautiful baby Ivy, now eight months, in December 2020, Kayley was over the moon and accepted that she would never see her newborns face in detail. I had prepared myself for not seeing Ivy clearly, she said. Id accepted what my vision was like, but I was nervous taking care of her, as theyre such delicate humans at that age. Ryan did everything at first, but then I adapted, and it became second nature. So, on her 33rd birthday on August 22, 2021, Kayley was over the moon when tech start up company, OXSIGHT lent her a pair of their special Oynx glasses, so she could see the world in detail for the first time in years. Available for pre-order in the UK, the smart glasses cost £1,499 plus VAT although low vision aids are VAT free for those eligible. They work by digitally enhancing the wearers remaining sight. It was honestly amazing to see my loved ones in the room, she said. It was just a breath of fresh air to be able to communicate with them properly to see exactly what was going on. I just couldnt stop staring at Ryan and Ivys blue eyes. I think having this disability in life can feel quite isolating. Its hard to read a room of people, so having the glasses, I felt like my old self was back in the room. Best of all, Kayley could see all her baby girls features clearly for the first time. It was amazing reading to Ivy, she said. I used to really love reading and now I cant read any books or magazines. Even walking down the street I cant read any signs. To sit and read to Ivy was special as it f
Kayley Storey bekommt mit 15 Jahren die Diagnose. Morbus Stargardt, eine seltene Augenkrankheit. An ihrem 33. Geburtstag sieht sie zum ersten Mal ihre Tochter, dank einer speziellen Brille.
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Sein Kind, sein eigen Fleisch und Blut, zum ersten Mal zu sehen, ist für jedes Elternteil absolut magisch. Wie muss es sich also für Kayley Storey aus Kent angefühlt haben, als sie – dank einer speziellen Brille – ihre Tochter mit 9 Monaten zum ersten Mal sehen konnte? Das Besondere: Die 33-jährige Mutter leidet an der seltenen Augenkrankheit Morbus Stargardt. Bei der Geburt ihrer Tochter Ivy im letzten Dezember konnte Kayley sie nur undeutlich sehen!

Die vererbbare Krankheit Morbus Stargardt hat sie seit dem 16. Lebensjahr

Mit gerade mal 15 Jahren erhält Kayley Storey die Diagnose Morbus Stargardt, wie Metro berichtet. Hierbei handelt es sich um eine seltene, vererbbare Augenkrankheit, die einen großen Teil der Netzhaus beeinträchtigt und so dafür sorgt, dass das detaillierte Sehvermögen reduziert wird. Für Kayley und ihre Familie ist das ein echter Schock, denn in der Familie gibt es eigentlich gar keine Vorgeschichte.

Bislang ist die professionelle Sängerin und Künstlerin gut durchs Leben gekommen, auch wenn sie Schwierigkeiten hat, sich auf Gegenstände oder Menschen zu fokussieren. Bei ihren Lieblingssendungen habe sie sich vor allem auf ihren Ehemann Ryan (35) verlassen, der ihr das, was im Fernsehen zu sehen ist, immer haargenau beschreibt. Das Gesicht ihrer Tochter wollte die 33-Jährige aber verständlicherweise unbedingt selber sehen können.

Lese-Tipp: Was die Augen über unsere Gesundheit aussagen

Ein magischer Moment: Die 33-Jährige sieht ihre kleine Tochter endlich zum ersten Mal!

Wegen ihrer Stargardt-Erkrankung hat Kayley Storey lange Angst gehabt, überhaupt Kinder zu bekommen, da die Krankheit genetisch bedingt und somit vererbbar ist. Sie und ihr Mann lassen sich von Kayleys Krankheit jedoch nicht entmutigen und sind sich sicher, dass ein Kind ihr Liebesglück perfekt macht. Als Ivy vor etwa neun Monaten das Licht der Welt erblickt, hat die 33-Jährige eigentlich akzeptiert, dass sie ihre Tochter nie im Detail erkennen wird.

Am 22. August wird ihr endlich das wohl schönste Geschenk überhaupt überreicht: Kayley bekommt eine Spezial-Brille, mit der sie Töchterchen Ivy zum ersten Mal richtig sehen kann. „Es war magisch. Man hat mir die Brille zum Ausprobieren geliehen, aber wenn ich eine eigene Brille bekomme, wird sich alles ändern. Ich kann Ivy irgendwann bei ihren Weihnachtsaufführungen zu sehen und ihr bei den Hausaufgaben helfen“, sagt sie gegenüber der britischen Zeitung.

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Spezial-Brille von Start-up lässt Kayley ihre Umwelt erkennen

SONDERKONDITIONEN: Satzpreis! Kayley says that the OXSIGHT Oynx glasses made her feel "back to her old self." (PA Real Life/Ian Wallman). *** Former X Factor contestant gets gift of sight for her birthday thanks to miracle glasses allowing her to see her daughters face clearly for first time By Harriet Bullough, PA Real Life A former X Factor contestant was given the gift of sight for her birthday when miracle glasses allowed her to see her daughters face clearly for the first time. Professional artist Kayley Storey, 33, was just 15 when she was diagnosed with rare Stargardt disease, an inherited eye condition affecting an area of the retina known as the macula and reducing central or detailed vision. While she refused to let it hold her back auditioning for the 2009 X Factor alongside Olly Murs and getting to the final 12 girls she relied on her HGV mechanic husband, Ryan, 35, to describe even her favourite TV shows to her. And when their daughter, Ivy, was born last December, she could not see her face clearly. But on August 22, Kayley, of Gillingham, Kent, says she had the best birthday ever, thanks to a pair of special glasses which enabled her to at last see Ivy properly. She said: It was magical. I was lent the glasses to try, but if I can get a pair, itll change everything. I can watch Ivy in her Christmas plays and do her homework with her. Kayley first realised something was seriously wrong with her eyes when she was 15 going to the doctor when she could no longer see the board clearly in lessons. She said: First I couldnt see the board, then I noticed my teachers faces disappearing, so I went to the optician. My first two tests were inconclusive, then I was diagnosed with Stargardt disease. It was a real shock for my whole family, as we have no history of it. Left unable to focus on objects or people, Kayley found the condition very difficult to deal with. She said: Its like someone has poured a big tub of glitter in the middle of my eye. Its really isolating. If Im in a room full of people, I dont know whats going on or how people are reacting. Despite her difficulties, she was still determined to achieve her dreams and, aged 20, auditioned for X Factor singing Unchained Melody by the Righteous Brothers. I started singing because it was a way of expressing myself, she said. If I hadnt been diagnosed with Stargardt disease I would never have started singing in front of people. I guess, in a way, I cant see the audience, so I dont get scared. Then, in November 2018, she met Ryan on a dating app tying the knot under lockdown restrictions in September 2020, when she was 25 weeks pregnant. We got engaged in December 2019 and originally planned our wedding for April 2020, she said. We had invited over 100 people, but when Covid hit we had to postpone. I fell pregnant and we decided to have a small wedding of 30 people in September 2020. It was perfect. Having less people made it much easier, so it actually worked out perfectly. But, despite the couples love story, Kayley was hesitant about having a child and potentially passing her condition on. The condition is genetic, she said. I was apprehensive about having children, as I was worried about them having the condition. But speaking to Ryan I realised it was going to be ok. He said that if that if we created someone like me then it was worth having even more people in the world. From that moment, I knew I wanted a family with him. Giving birth to beautiful baby Ivy, now eight months, in December 2020, Kayley was over the moon and accepted that she would never see her newborns face in detail. I had prepared myself for not seeing Ivy clearly, she said. Id accepted what my vision was like, but I was nervous taking care of her, as theyre such delicate humans at that age. Ryan did everything at first, but then I adapted, and it became second nature. So, on her 33rd birthday on August 22, 2021, Kayley was over the moon when tech start up company, OXSIGHT lent her a pair of their special Oynx glasses, so she could see the world in detail for the first time in years. Available for pre-order in the UK, the smart glasses cost £1,499 plus VAT although low vision aids are VAT free for those eligible. They work by digitally enhancing the wearers remaining sight. It was honestly amazing to see my loved ones in the room, she said. It was just a breath of fresh air to be able to communicate with them properly to see exactly what was going on. I just couldnt stop staring at Ryan and Ivys blue eyes. I think having this disability in life can feel quite isolating. Its hard to read a room of people, so having the glasses, I felt like my old self was back in the room. Best of all, Kayley could see all her baby girls features clearly for the first time. It was amazing reading to Ivy, she said. I used to really love reading and now I cant read any books or magazines. Even walking down the street I cant read any signs. To sit and read to Ivy was special as it felt so norma
Diese Spezial-Brille ist der Grund für Kayleys großes Glück.
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Dank des Tech-Start-up-Unternehmens OXSIGHT, sieht Kayley an ihrem 33. Geburtstag zum ersten Mal ihre Umwelt wieder im Detail. Wie das funktioniert? Dank einer speziell angefertigten Oynx-Brille, die die verleibende Sehkraft des Trägers digital verbessert. Dank des Gadgets fühlt sich Kayley zudem endlich wieder mit ihren Liebsten verbunden, sodass sie jetzt auf ihre eigene Brille spart: „Ich liebe es, Mutter zu sein, und es war wirklich das schönste Geburtstagsgeschenk, das Gesicht meines kleinen Mädchens zum ersten Mal sehen zu können.“ (vdü)

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