Gesundheit: Alle News & Infos - Seite 183

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SONDERKONDITIONEN: SATZPREIS! Couple ?blessed? to have three children with albinism bemoan ?rude? comments and say ?never judge a book by its cover?
A mother of five who has three children born with albinism, which gives them pale skin and visual impairments which can cause them to ?walk into buildings?, has said she wishes people would stop making ?rude? and ?nasty? comments as she and her husband feel ?so blessed to have them?.
Stacey Chappell, 34, a full-time mother, and her husband Jason, 40, a cleaner, from Hebburn, South Tyneside, ?did not know anything about? albinism ? a condition which affects the production of melanin, the pigment that colours the skin, hair and eyes ? prior to their children?s diagnoses.
Albinism affects the family?s everyday life as the three children have to wear factor 50 sun cream every time they go outside, even when it is cloudy, and the couple have installed blackout curtains at home as sunlight can cause severe burns due to the reduced amount of melanin in their skin.
After the birth of their first child Jay, 15, Stacey said she ?blamed (herself)? for his albinism because ?(she) made him? and the couple were in and out of hospital ?all the time?.
Stacey said she suffered with postnatal depression and initially rejected help from others as she felt it was ?(her) responsibility? to look after him; however, the couple later made contact with Guide Dogs ? the leading UK charity for people with sight loss ? and this has been invaluable.
Despite the daily challenges the couple face, they said they feel ?privileged? to have three children with a ?rare? condition and they hope that by talking more openly about albinism, people will think twice before making ?nasty? comments, as people should ?never ever judge a book by its cover?.
?I feel privileged. I?m so blessed to have them because it?s a rare condition,? Stacey said.
?We?re actually honoured to have them as our kids; they?re so rare.
?People will go, ?Look at his hair, look at his eyelashes?? and I?ll say, ?Yeah, he?s an albino?.
?Then they?ll say, ?Why do you feel like you?ve got to tell people??, and I?ll say, ?Do you know why? Because I?m so privileged; I feel so special having them as my kids?.?
Three of Stacey and Jason?s children ? Jay, 15, Leon-James, three, and Amelia-Grace, one ? were born with albinism and, as a result, all three wear glasses and have visual impairments.
The couple?s other two children ? Sky, 13, and Lexi, 11 ? do not have the condition.

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Zum Themendienst-Bericht «Vorsicht, ansteckend! Diese Kinderkrankheiten sollten Eltern kennen» von Stefanie Michel vom 6. Dezember 2017: Hat ein Kind Fieber, gehört es grundsätzlich nicht in die Kita. Am besten, es bleibt daheim, bis es einen ganzen Tag und eine Nacht lang fieberfrei war. (Archivbild vom 14.03.2015/Nur zur redaktionellen Verwendung durch Themendienst-Bezieher im Zusammenhang mit dem genannten Text.) Foto: Andrea Warnecke/dpa-tmn

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