Seltene Krankheiten: Alle News & Infos

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Die Eltern widmen sich in Vollzeit der Pflege ihres Babys.

Baby Mathilda darf nicht kuscheln

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Mila (8) leidet, seit sie 3 Jahre alt ist, an GM1 Gangliosidose 1 Typ 2, auch bekannt als Derry Syndrom.

Eltern testen unerforschten Wirkstoff

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Trauer um Baby Rio: Oskar Ogorkiewicz und Mandy Brobeck verarbeiten ihren Schmerz gemeinsam mit ihren Followern.

Ethikkommission muss Baby "erlauben"

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12-jähriges Schulmädchen stirbt nach einer seltenen Reaktion beim Einatmen von Duschdampf

War der Wasserdampf zu heiß?

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1,2 Kilogramm brachte der verfilzte Haarklumpen, den die Ärzte aus dem Magen eines Mädchen (13) holten, auf die Waage. Das Mädchen soll bereits seit sieben Jahren am Rapunzel-Syndrom leiden.

Teenager hatte Haarklumpen im Magen

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Endlich Hoffnung für den kleinen Mudi

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Acht Embryonen aus Baby entfernt

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Ryan Makinson hat die "Bluterkrankheit".

Baby hat überall blaue Flecken

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Juliana Pascarella und ihr Hautausschlag

Juliana (21) entkommt knapp dem Tod

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Young beautiful amorous couple making love in bed on white background

Mann allergisch gegen eigenen Orgasmus

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Junge kommt ohne Augen auf die Welt

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Leticia Ramos hat eine seltene Form der Glykogenese.

Frau muss alle 3 Stunden Stärke essen

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SONDERKONDITIONEN: Satzpreis! A man is a 'medical mystery' after a commonly prescribed anti-depressant drug has changed his skin colour from white to dark grey - SWSMskin
A man has the medical profession scratching their heads after a 'mystery' reaction to a commonly prescribed drug changed his skin colour from white - to dark grey.
Tyler Monk, 34, was prescribed an anti-depressant last year after consulting a doctor for his mental health.
But the treatment failed to help his mental health - but did change the colour of his skin.
Tyler was given Fluoxetine, a type of antidepressant known as a selective serotonin reuptake inhibitor (SSRI), that is commonly prescribed to treat depression.
He started taking the drug in May 2021, but within a week Tyler?s wife, Emily, 28, noticed that his skin colour was changing.
Tyler, a pest control field inspector, stopped the medication after only a few weeks as it wasn?t helping his mental health, but his skin continued to darken.
First, his ears started to change colour before it rapidly spread to his neck and his face - before effecting his arms and hands.
Tyler also experienced other symptoms such as extremely red, irritated eyes and his skin is now very sensitive to the sun and it feels like it has been burned.
He admits to being ?in denial? at first, but after speaking to two of his co-workers, Tyler accepted he was actually turning grey.
Tyler has visited several specialists near the couple's home in Kinder, Louisiana, USA, since the discolouration, but they have all been stumped.
Doctors have ruled out any serious diseases, poisoning and autoimmune conditions - but they still can't tell the monks what is causing the problems.
Tyler's dermatologist has now referred him for an appointment with a team of eight skin specialists, which is an exciting breakthrough in a seemingly unsolvable case.
Ahead of his visit with the specialists, Tyler is due to receive a CAT scan of his abdomen and new rounds of blood work.
He said: "First they thought it was photosensitivity, so I'm having a reaction to light, but I've been covering up and I'm still getting darker.
?I can?t get any answers from the specialists so we decided to post on TikTok. We thought that it couldn?t hurt to share online, so let's see if by some chance anyone else out there has had this happen or maybe has some answers for us.
?It?s mainly been supportive! People have made lots of jokes. But we joke a lot so we just laugh along with them!?
Tyler and Emily have two children, they wish to keep anonymous, who stay-at-home mum Emily schools.
She described that they have tried their best to keep their daughters educated without scaring them or making them worried about their beloved dad.
Emily said: "For me and the children, we just worry about his health.
?We really don?t mind the colour change as long as he?s healthy and okay with it. We support whatever he chooses to do about it."
Emily initially posted about Tyler to the social media app TikTok to raise awareness about this drug and warn others about the importance of knowing the side effects of what you are taking.
She has used her TikTok to discuss with people around the world who have suggestions on what it could be and where they could get help.
So far the couple have spent around $500 on Tyler?s medical care.
They are now facing a potentially huge hospital bill, as they don't have insurance or know how many tests will be needed to determine what is happening.
Emily has organised a GoFundMe page in the hopes of raising some money to cover medical costs, travel and any other expenses whilst they prioritise getting Tyler back to his old self.

You can donate here - https://gofund.me/4a860faf.
/ action press

Tylers (34) Haut verfärbt sich grau

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Giulia Asbeck hat venöse Malformation - wie Sophia Thomalla

"Ich teile Sophia Thomallas Schicksal"

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Dr. Specht und Sophia Thomalla

Was ist eine venöse Malformation?

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