Seltene Krankheiten: Alle News & Infos

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Macy Williams hat seit einem Jahr nichts mehr gegessen, weil ihr der Gedanke zu viel Angst macht. Sie leidet an der seltenen Krankheit "Arfid", einer Lebensmittelphobie.

Macy (18) hat große Panik vor Essen

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Die kleine Olivia hat Kinderdemenz. Liv, wie ihre Eltern sie nennen ist gerade einmal vier Jahre alt. Ihre Eltern waren von der Diagnose geschockt. Aber sie wollen für ihre Liv kämpfen. Was die Krankheit bedeutet und wie auch ihr helfen könnt, seht ihr im Video.

Liv (4) wird nie erwachsen werden

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Auf den Aufnahmen des Gehirns konnten die Ärzte den Bandwurm erkennen.

Mann hat Bandwurm-Larven im Gehirn

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Anelize Koster

Anelize hat das Katzenaugensyndrom

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Mutter und Sohn Sebastian im Krankenhaus

Junge (6) stirbt nach „Ohren-Infekt“

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Poppy Massey

Kleines Mädchen wird zu Steinen

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HANDOUT - 20.11.2023, Sachsen-Anhalt, Magdeburg: Ein 32 Kilogramm schwerer Tumor. der einer jungen Frau entfernt wurde, liegt in einem Raum der Universitätsklinik. Die gutartige Geschwulst, ein sogenanntes Zystadenom, hatte sich nach Klinikangaben über längere Zeit unbemerkt entwickelt. (Zu dpa: «32 Kilogramm schwerer Tumor bei Frau in Magdeburg entfernt») Foto: -/Universitätsfrauenklinik Magdeburg/dpa - ACHTUNG: Nur zur redaktionellen Verwendung im Zusammenhang mit der aktuellen Berichterstattung und nur mit vollständiger Nennung des vorstehenden Credits +++ dpa-Bildfunk +++

Frau (24) hat Tumor in Kindes-Größe

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Jennifer Saro ist alleinerziehende Mama.

Diese Auswirkungen hat der Gendefekt

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Julius sucht dringend einen passenden Stammzellenspender.

Julius (1) sucht seinen Lebensretter

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Elowen im Krankenhaus

Mädchen schwebte in Lebensgefahr

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PIC FROM KENNEDY NEWS AND MEDIA (PICTURED: BETH TSANGARIDES, 20, AFTER A SKIN FLARE-UP) This young woman is so 'allergic to HERSELF' that even laughter can leave her looking like 'an acid attack victim' - but has finally worn makeup for the first time in years. Beth Tsangarides says her skin and body react to 'everything' she does, flaring up when she laughs or cries 'too much' and even going into anaphylaxis from many foods, herbs and spices. Horrifying photos show the 20-year-old's scorched, weeping and scabby skin that baffled docs claim is a 'medical mystery'. DISCLAIMER: While Kennedy News and Media uses its best endeavours to establish the copyright and authenticity of all pictures supplied, it accepts no liability for any damage, loss or legal action caused by the use of images supplied and the publication of images is solely at your discretion. SEE KENNEDY NEWS COPY - 0161 697 4266

Was Beth (20) jetzt noch Mut macht

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Story from Jam Press (Traumatic Skin Condition)

Pictured: Assya Shabir.

‘I have rare butterfly skin condition – trolls say I look like Freddy Krueger’

A woman who suffers from an incurable condition says her skin is as “fragile as butterfly wings”.

Assya Shabir, from Birmingham, was born with junctional epidermolysis bullosa (JEB) – a form of EB that describes a group of genetic conditions that affect a person’s skin.

The 36-year-old often has to deal with blistering, open wounds, skin loss, friction and irritation – heavily impacting her day-to-day life.

She is often “judged or ignored” by strangers and is in and out of the hospital for treatment.

“My skin is as fragile as a butterfly’s wings,” Assya, who shared her journey on Instagram with her 10,900 followers (@assyaebqueeen), told NeedToKnow.co.uk.

“The slightest grip or even a bump can blister and graze my skin.

“It’s not just external; I get blistering in my oesophageal system, eyes, mouth, gums and other areas too.

“Living with JEB is complicated at the best of times, it doesn’t just affect me physically but mentally and emotionally too.

“It is hard to find genuine friendships and relationships.

“Some people don’t acknowledge me – they’ll judge or ignore me.”

Sadly Assya also has to put up people staring or making faces.

She said: “Most of the time I try not to react or even respond.

“But when I’m going through a flare-up and I’m already feeling worse because the pain is unbearable and I’m already feeling useless as it is, their looks hit hard and just make me feel like s**t.

“I’m sure you can imagine the kinds of comments I get too.

“Ironically it’s from adults more than kids – yes of course kids comment but they’re not aware of why I look different, I always say kids are very innocent.

“One of the worst ones I’ve had face to face is ‘you look like Freddie Kruger’ and ‘your mum should have aborted you’.

�

Assya hat die Schmetterlingskrankheit

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Sisco als Harry Potter verkleidet

Kasse verweigert Tumorbehandlung

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Story from Jam Press (Brain Eating Bug)

Pictured: Stefanía Villamizar González.

Girl, 10, dies after contracting brain-eating bug from swimming pool

A 10-year-old girl died after allegedly contracting a brain-eating bug from a swimming pool.

Stefanía Villamizar González developed ear pain and a fever and began vomiting two days into her family holiday.

She was treated for a suspected ear infection before returning home, where her discomfort eased off.

But a fortnight after her initial symptoms, she struggled to get out of bed and began convulsing.

She was taken to a hospital, where she remained under strict medical care until her death over three weeks later.

After a weeks-long investigation, experts gave her cause of death as amoebic encephalitis.

It is a rare central nervous system infection with a 95 per cent chance of death.

They believe it was caused by Naegleria fowleri, often dubbed the “brain-eating amoeba”, which is often found in badly managed pools or stagnant water.

Devastated Tatiana González believes her daughter contracted it through her nose as she played in the water in Santa Marta, Colombia, in June.

Stefanía, from Bucaramanga, was a keen tennis player, skater, and ballet dancer who dreamed of becoming a gymnast.

A close relative told local media: “We share our story so that other children and families do not suffer what we are going through.

“We are destroyed, devastated.”

The operations manager of the hotel where Stefanía is believed to have contracted the amoeba has pledged to reinforce safety standards.

Local media made no mention of any criminal charges.

ENDS

EDITOR’S NOTE: Quotations have been translated to English.

Tod durch „hirnfressende Amöbe"

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Gynäkologin Dr. med. Judith Bildau

Wenn Hormone den Kinderwunsch bremsen

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